Want to see my face? Well, you’re in luck. There is a 93% chance I’ll be doing a Zoom interview with Michael Miclon tonight as part of the Richard3 viewing party! 7pm Eastern (6pm Texas). If you don’t know what Richard3 is then just go here and find out. https://www.johnsonhall.org/event/richard3-viewing-party/
On with the news
I’m still alive. Pretty sure, anyway. As I mentioned before I switched meds from the Cometriq to Lenvima (Lenvatinib). I had to take a break from the Cometriq for about a week to flush it from my system before starting Lenvima. I can tell you that it’s scary as hell to see what the cancer does when I’m not on meds. In that one week my neck swolled up and was painful to the touch, hard to swallow, hard to talk, and an overall feeling of “oh wow, I’m dying”. Thankfully, it was mostly a flare-up from going off the meds and has since settled just a little. But the overall constriction on my blood tubies going to my head is very noticeable. Besides feeling light-headed, I’m also experiencing a dull headache 24hrs a day that ramps up to a migraine 2 or 3 times a day. It’s tons of fun.
I thought for sure at my last appointment they were going to tell me that I only have a month to live. Seriously, I felt that bad. Thankfully, we had some good-ish news although very invalidating with how I felt. I’m still somewhat stable. Yes, I’ve been declining slowly since January which sucks, but nothing like I thought. My scans show only minor growth. My labs are a little less happy sounding (Calcitonin still over 10,000), but I’m still hanging in there.
I started Lenvima on July 6th. I’ll be getting labs ever 2 weeks and we should hopefully start seeing results within 4-6 weeks. There is about a 45% chance that the Lenvima will be effective. So cross your toes. It’s damn scary walking around with cancer and having no safety net. Every day, hour, minute, second I go without an effective therapy I’m just losing ground. The countdown is always running, and you don’t get that time back.
I had plans to visit Maine in June, but that fell apart as I’m just not feeling well enough to travel anymore. And that blasted virus makes travel really hard. Thankfully, a bunch of my family is making the trek to Texas in the coming weeks to visit me. Yay! Can’t wait to see them. And Mr. Rona could you just take a break for a minute so their travel plans don’t get messed up? Thanks.
I know I sound fairly upbeat in this post, but it’s really just delirium. 😀 Anyway, that’s life here on the edge of existence. Peace, love, and pancakes.